Special Events

The PSC will be hosting 4 virtual events during PHACE Syndrome Awareness Week! All events require registration, so be sure to reserve your spot now.

LUMBAR and PHACE - What is the Relationship?

Sunday, March 16th at 8:00pm EDT

Hop on our virtual chat with Dr. Denise Metry and Dr. Dawn Siegel as they discusses the facts of LUMBAR Syndrome and it's relationship to PHACE Syndrome. Learn how the PHACE Syndrome Registry plays a role in resarch in LUMBAR and PHACE syndromes.

You Have a PHACE Diagnosis, Now What?

Tuesday, March 18 at 8:00pm EDT

Join our virtual discussion with Dr Beth Drolet and Dr. Ilona Frieden, authors of the recently published "10 and Over" Study. Learn more about the early care of PHACE syndrome, what you should be asking your treating physican, and what to expect as your child ages.

New Member Meet-Up

Wednesday, March 19 at 8:00pm EDT

New to the PSC? Join other adults and families as you meet one another, and learn more about the PHACE Syndrome Community!

Our Zoom virtual meet-up is a great way to feel connected and supported.

Kiddos Meet-up - Ages 7-12

Saturday, March 22nd at 12:00pm EDT

Spend an hour with "kids" of the PHACE Syndrome Community. We will play bingo, go on a scavenger hunt, and have fun meeting other kids.

Watch past meetings and lectures on the PSC YouTube Channel, which you can visit by clicking here.